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his name was kayden

{Image is screenshot of Kayden Clarke, taken from his video, Fantastic News, announcing funding for his gender reassignment surgery} Yesterday, the autism community was rocked, yet again, by the loss of one of our own. The first headline that I read was the Independent’s, reading: Woman with Asperger’s syndrome who shared viral dog video shot dead … Continue reading

representation

representation

{image is the iconic depiction of a hand on which is written the mantra of the disability advocacy movement: Nothing about us without us.} Yesterday, Lydia Brown wrote a searing post about the lack of autistic representation on the Massachusetts Autism Commission. Not only, Lydia tells us, is there only one seat out of 35 held for … Continue reading

whippourwill

whippourwill

{image is a photo of Steven Kurtz at work in the kitchen. He is, of course, smiling.} Oh, hi. You’re still here! That’s awesome. I really appreciate you sticking around, especially because I have a pretty cool story to share. Well, a couple of them actually, but let’s take it one at a time, shall … Continue reading

proud

Brooke and Anna in a picture that Brooke insisted that I take on the way out the door. They are hugging.  On Saturday night, Brooke had a sleep over at her friend, Anna’s house. When I picked her up on Sunday morning, I told her that we’d be stopping off at the deli to grab some … Continue reading

not her words

No, I haven’t read that new autism book yet. No, I didn’t watch that special on autism last night. No, I don’t have an opinion on that article that you sent me three days ago. Why? Because I don’t have the bandwidth for it right now. I just don’t. I can’t. It’s too much. My dear … Continue reading

a really great book about a so awesome dad

a really great book about a so awesome dad

After Luau’s birthday, I wrote a post recapping the festivities. In that post, I’d shared the following: Finally, it was time for presents. Brooke went first. And her gift to him was pretty much the most awesome thing ever. And I’m not telling you what it is yet because it was so awesome that, with … Continue reading

a question

a question

  His wife is beautiful. She’s charming and fabulous and the envy of the PTA. “I don’t know how she does it,” echoes in her wake as she works full-time and manages the monthly bake sale and volunteers for the garden club and sends 28 homemade invitations to her little one’s perfectly planned and executed … Continue reading

2015 – to make a beginning

2015 – to make a beginning

  {Image is a graphic. On a blue and yellow background, text reads, “And to make an end is to make a beginning. The end is where we start from.” The words are from my favorite poem in all the world, T.S. Eliot’s Little Gidding, the fourth of the Four Quartets.} I came here to … Continue reading

dear jennifer

dear jennifer

{image is a giraffe in a party hat with text reading, “Giraffe Party.” It is the profile picture for my friend, Jennifer’s public Facebook page. Click on it. Go ahead, it won’t bite.} Dear Jennifer, There’s been something that I’ve been wanting to tell you for a while now. The words have played again and … Continue reading

phone home, part two

phone home, part two

{image is a photo of Brooke on Christmas morning, moments after opening her new phone, using it to take pictures of her Kai-LAN figurines.} In August of 2014, I wrote a post responding some comments that I’d received on Facebook when I’d referred to the fact that we’d taken Katie’s phone away for three weeks. … Continue reading