luau, you are their father

luau, you are their father

A note to my dad: Please don’t read this. It will ruin a Christmas surprise. Falalalalalala.  Last night, we had Luau’s birthday party. It was, of course, a surprise because that’s what we do around here. We plan, and let the guest of honor know that we are planning, surprise parties. Hey, you do it … Continue reading

well now they know

well now they know

{image is a photo of Elsa and Anna from Frozen, arm-in-arm.} As many of you know, Brooke has some sensory triggers that can be extremely challenging for her. Crying babies, smoke / fire alarms, and her sister’s cough have always topped the list. For years, we’ve worked to help her to minimize the trauma of … Continue reading

and never is a load of crap

and never is a load of crap

When we got home from Brooke’s chorus concert last night, I posted the following on Diary’s Facebook page: Brooke’s friend, Becky, who is not in the choir, came to the school tonight to see Brooke sing. Becky, like Brooke, is autistic. Sitting through an hour-and-a-half-long band and chorus concert is not an easy feat. But she … Continue reading

allison

Last night, Brooke’s fish died. It was sad. Allison had been around an improbably long time. Even as her tankmates had fallen away one by one, she had managed to carry on. Long after she should have expired, she was still happily swimming. We’d become convinced that she was invincible. She wasn’t. Brooke cried. She … Continue reading

love you more 

Dear Dad, As I pulled out of the driveway on my way to the office this morning, something caught my eye. I followed the motion to Katie’s window, where she was standing and waving. I waved back but wasn’t sure she could see me so I stopped the car, opened my window, and stuck my … Continue reading

gift guide

gift guide

{image is a photo of Brooke receiving a gift from Luau on Christmas morning, 2009. She is holding Telly Monster, whom she’d just gotten from my mom.} – Back in October, Maureen Wallace from SheKnows reached out to ask for my input for a toy guide that she’d been asked to put together for autistic children. Because she gets … Continue reading

but that’s not why i’m proud

  Dear Katie, I couldn’t be happier that you got a part in your first high school musical. I am so, so excited for you. I know how much you wanted this. I know how much it means to you — on so very many levels. It’s awesome, kiddo — truly nothing less than awesome … Continue reading

i stay

i stay

{image is a photo of Katie and me with our friends, Lisa and Steve, and their daughter, T in 2005. The girls were four. The photo is on Katie’s bulletin board.} It’s time for bed. Katie is stalling. She doesn’t want me to leave her room. I’m exhausted and my patience has run thin, but … Continue reading

lily eskelsen garcia is missing the point

lily eskelsen garcia is missing the point

For Jenny The other day, I wrote an open letter to Lily Eskelsen Garcia, the now infamous President of the NEA. In that letter, I wrote the following: Last month, you made a speech at the Campaign for America’s Future Awards Gala. The gala was billed as an opportunity to celebrate “progressive champions.” You were … Continue reading

the odyssey of the watermelon slippers

the odyssey of the watermelon slippers

Editor’s note: Please see the end of the post for image descriptions On Monday night, I finally convinced Miss Brooke to write a Christmas list. Past experience has proven that she will eventually produce one and, given her track record of asking for things like, oh say, “Fire Chicken Boots” and a “Mary Magdalene from … Continue reading