Tagged with autism speaks

this is getting old

Image is a photo of Brooke on the Boycott Autism Speaks Facebook page holding a sign that she and I made together. I wrote the text in purple at Brooke’s request, and Brooke wrote “Thank You” and “Boycott Autism Speaks” by herself in pink. She is wearing the t-shirt that she happened to be wearing on … Continue reading

why i #BoycottAutismSpeaks

why i #BoycottAutismSpeaks

{image is a photo of me at a lectern, addressing the crowd at an Autism Speaks dinner in Hartford, CT. I believe it was 2009.} I thought that I was doing right by my child. (I didn’t know yet how radically I wasn’t.) I thought that I was fighting for her. (I was fighting HER.) … Continue reading

to the students of my alma mater – thank you

to the students of my alma mater – thank you

Editor’s note: Lest you think that Diary is becoming the home of the open letter, this one was written by request. My dear friend, Emma (of the fabulous blog, Lemon Peel), wrote to ask for my help. A fellow Smith Alumna, she remains in contact with the Smith Disability Alliance, who have been grappling with this … Continue reading

but what if he’s wrong?

but what if he’s wrong?

  {image is a photo of me at a podium, speaking into a microphone at an Autism Speaks walk kickoff in 2010.} Yesterday, I read a post that was written a couple of months ago, but just made its way to my screen. It was written by a woman who goes by Amythest on her tumblr, … Continue reading

giving

giving

On December 31st, my inbox fills with last-minute pleas from every Tom, Dick and Harry looking for money before the end of the year. It’s understandable, given that there are obvious financial benefits to maxing out one’s tax-credit allowance within the calendar year, but, let’s be honest, it’s gotten to the point where requests are … Continue reading

dear suzanne – again

dear suzanne – again

Dear Suzanne, It seems we’re here again. I don’t want to be here. I don’t want to be having a different version of the same old tired conversation. But I don’t know what else to do. I don’t know how else to counter the harm that you continue to do in the name of some … Continue reading

the color blue

the color blue

{image is a hand painted mosaic rainbow lightbulb and the beautiful, multicolored light which it casts. Click on the image to order one from MoodLights on Etsy, with whom I have no affiliation whatsoever} As many of you know, after years of trying desperately to change the way in which Autism Speaks approaches autism advocacy, I … Continue reading

success

success

{Image is a photo of my beautiful friend, Barb, co-author of one of my favorite books and generally one of my all-time favorite people. She is, by anyone’s definition, a success. She is non-speaking.} Oh, friends. There’s something I have to say. I hope you’ll indulge me. Actually, please do indulge me. It’s important. Yesterday, I … Continue reading