Tagged with autism

a place to dance

a place to dance

    Tomorrow there will be words. Today there are pictures. Today, my girl is saying everything that needs to be said.    {images are photos of Brooke hanging out in her usual studio before heading up to the big one for the show} {image is a photo of Brooke leaning against the barre watching … Continue reading

the school to prison express

the school to prison express

{Image is a photo of  young child in handcuffs. Read the story it came from here.} The headline of the article read, “Judge Finds Lynchburg Middle Schooler with Autism Guilty on Criminal Charges.” In the body of the article was the following .. Doss told PRI that Kayleb was instructed that day to wait – while … Continue reading

to the autistic people in the crowd

to the autistic people in the crowd

I had made a decision. Before I said anything else, I would say this. Even if it were technically only addressed to 3 out of the 240 people in that room, it mattered. And it mattered that the other 237 hear it. This is what I said. Ed note: I did my best to transcribe the words … Continue reading

what i learned in (very) northern maine

what i learned in (very) northern maine

On Saturday night, I had the honor and delight of sharing the podium with Michele Gauvin at the Aroostook County Autism Support fundraiser. A few notes on Aroostook, or, “The County,” as I’ve learned to call it … It’s in Northern Maine. What you’re now thinking? Further North. Nope, further than that. It’s North of … Continue reading

the experts

the experts

{image is a screenshot of Bill and Ted from Bill and Ted’s Excellent Adventure} Dr William Acton. Ever heard of him? He was quite renowned in his day (his day being the mid-nineteenth century.) In 1836, at the age of 23, Dr. Acton moved to Paris where he studied the functions of the generative and … Continue reading

our blue

our blue

  {photo is an abstract blue image. i find it quite beautiful.} it is april blue-hued, thick-with-fear, overwhelming, tired, angry, out of words, april blue blue-hued blue what is that song? damn it, what is that song? blue-hued into blue a mellow blueness yes i start to hum the words come Where are you going? Where are you … Continue reading

communication

communication

I am in an unfamiliar place. I do not speak the language, nor know the local customs. I do not feel well. I approach a woman nearby. “Excuse me, please,” I say. “I don’t mean to bother you, but I have a stomach ache. Can you help me?” She puts her finger to her lips and … Continue reading

care and handling

care and handling

Yesterday, I posted the following on Facebook: Three years ago when Brooke needed to have a couple of baby teeth pulled, we were told (and agreed) that the only way to do that would be in a hospital, under general anesthesia. That was what we did. Last month, we were told that she needed to … Continue reading

gearing up for april

gearing up for april

– Last year, Katie came to me with a question. “Mama,” she asked, “now that we don’t feel like we can support Autism Speaks anymore, what can I wear to school for Autism Awareness Day?” While I know the question of what to wear may seem silly to some, we take our autistic pride pretty seriously around … Continue reading