As those of you who follow Diary’s Facebook page may know, we’ve had a harrowing few days. Brooke and I spent a horrific night in the ER on Monday and left with the terribly unsatisfying diagnosis of ‘We’re not really sure what happened here.”
Although we’re hoping that the answer will be that she had a migraine (and that, if that’s the case, she never, ever gets one again), there were some really unsettling events that night that looked suspiciously like seizure activity.
Given that at least 25% of children on the autism spectrum will experience seizures by the time they reach adulthood, and the onset of puberty is a common trigger, further, and somewhat exigent, investigation is warranted. Hence, we’re headed for another EEG tomorrow morning, followed by a sedated MRI and then a sit-down with the neurologist to try to put the pieces of this puzzle together.
I can’t possibly tell you how grateful I am for all of the love you’ve shown us these last few days.
To the mom who sent the MRI Social Story yesterday, please know.
To all of you who have said, “We walk this path. It sucks and it’s scary, but it will be okay,” please know.
To my friends who sat with us in the ER on Monday night, virtually yet as tangibly as could be, please know.
To Miss J and Brooke’s teachers and IF, all of whom wrote to check up on her and to send their support yesterday, please know.
To my colleagues at work, who said, “We have you covered; when you need to go, you go,” please know.
To all of you who have quietly prayed for my girl, please know.
Please know how grateful we are.
You hold us up when we need it most and nothing in this world means more.