Posted in May 2013

of faith, slingshots, and a clarinet

Please, please, PLEASE read THIS before you continue. I’m begging.  * First there was this … Why do I always notice the typos once it’s too late to fix them? Ah well. I assume you don’t come here to bask in my editing skills. Moving on.  And then there was this … But in between, … Continue reading


~ Three times in the last two weeks, I have been asked some version of the same question. Why do you continue to engage with Autism Speaks when you clearly find so many things about the organization so troubling? Three times, I have answered essentially the same way. Because they are visible. And because they … Continue reading

showing up

    . Saturday morning .. . Later that afternoon … . . And finally … . . I’m not sure how to write about that day – about attending the meeting, about being in, what felt to me, like that sacred space. I was nervous going in. I didn’t know what to expect, which, … Continue reading

self-advocacy and the power of no

* Respect your elders, young man. Always comply with the authorities. Listen to adults. Do what you’re told. * Good listening. Good girl! Great job following instructions! You did exactly what I asked! You get a sticker on your chart! I did just as I was told! Hooray for me! ~ As a family, we … Continue reading


  Brooke, doing her thing Sunday afternoon Katie and I had just returned from the mall. She brought her packages to her room and I headed into the den, where I knew I’d find Brooke. There she was, in her PJs, watching Dora while rolling back and forth across the floor on her scooter, as … Continue reading


Diary’s Facebook status on Friday, when it was apparently hacked by a woman in Canada ~ I bet you got pushed around Somebody made you cold But the cycle ends right now ‘Cause you can’t lead me down that road ~ Mean, Taylor Swift . Okay, so let’s just say that I know this kid. … Continue reading

listening, continued

Part One ~ “The trouble is that once you see it, you can’t unsee it. And once you’ve seen it, keeping quiet, saying nothing, becomes as political an act as speaking out. There is no innocence. Either way, you’re accountable.” — Arundhati Roy That quote is atop Lydia Brown’s blog, Autistic Hoya. It is, in … Continue reading


~ “The orifice of learning  is the ear, not the mouth, kid. If you want to actually start learning, shut the $%#@ up and listen.” – Jimmy C I’d love to tell you all about him, but time is short this morning. It will have to suffice to say that Jimmy was my mentor. The … Continue reading

well played

* The following is in keeping with a promise that I made on the day that I became a mother. With my newborn baby in my arms, I agreed that when the time came, I would tell my dad every last detail of stories like this one. Because, as he said “I deserve that, Jessie.” … Continue reading

the crystal egg

*** It would seem, however, that the luminousness was of some exceptional sort, and not equally visible to all eyes. ~ HG Wells, The Crystal Egg ** On with the dance! Let joy be unconfined. – Lord Byron * The back story There are moments in this life that defy description. That are simply too … Continue reading