Posted in January 2014

again

again

Text: If you really want to be an advocate, start by listening to the people you claim to be advocating for. Earlier today, I sent the following email to Liz Feld, President of Autism Speaks. It is short and not particularly well-written, but it is what it is. I didn’t feel the need to repeat … Continue reading

a playground of words

a playground of words

Yesterday, I sent the following letter to everyone on Brooke’s support team. Team Brooke, Hi, all. I hope everyone is doing well. I read something this morning that stopped me in my tracks and I hope you don’t mind, but I feel compelled to share it. It’s a post about echolalia written by an autistic … Continue reading

out of the shadows

out of the shadows

– Yesterday, I wrote a post about how a dear friend of mine told her son for the first time that there was a name for the constellation of gifts and challenges that help to make him who he is. I told the story about him smiling at the news that he, in his words, … Continue reading

snowflakes

snowflakes

– It started with a text from one of my dearest friends. “Want a story?” she asked. Truth was, I wasn’t really up for it. I was steeping in a toxic soup of anger and frustration and, worst of all, impotence. My girl was curled into me, watching Oobi on her iPad. I was contemplating … Continue reading

the shape of hope

the shape of hope

Brooke in one of her favorite shirts Yesterday, I wrote a post about hope. About how important it is to believe in the unlimited potential of our children as they self-actualize into the incredible human beings that they, well, already are. The comments on the post were incredible. I even posted a piece of one … Continue reading

believe

believe

{image is a photo of Roxy, Katie, Brooke and Ms M on our lawn, 2009} When I first started writing, I was amazed to find that there were other people out there in the ether who .. well, let’s just start there. I was amazed to find that there was anyone out there. Among the blogs … Continue reading

the best show of ever

the best show of ever

– THIS is how it happened that my girl was to sing a solo – A SOLO – in her winter concert.   This is why it didn’t happen the night that it was originally supposed to … This is what I posted on Diary’s Facebook page last night when it was alllllmmmmooossssttt time. These … Continue reading

a life in shoes

a life in shoes

Warning: Mixed Metaphors Ahead, Proceed With Caution – After our New Year’s Eve drive debacle last week, I was too tired to  .. well, anything. The girls and I had changed out of our fancy dresses at my Grandma’s place and, in our rush to get our rag-tag band home, had haphazardly shoved them, along … Continue reading

what is this sorcery?

what is this sorcery?

Wise words from my friend M. The other day, I took Katie to Taco Bell for lunch. Don’t judge, people, every once in a while a girl needs a damn chalupa. Anyway, after the meal (clearly, I use the term “meal” loosely) she convinced me to try their new Cinnabon bites. By convinced me, I … Continue reading

ABA

A reader asked a question this morning on Diary’s Facebook page. “Jess,” she asked, “how do you feel about ABA?” I let out a heavy sigh when I saw it. I almost wrote, “I think it’s a hot-button topic and I don’t want to go near your question with a ten-foot pole, but hey, thank … Continue reading