Posted in May 2014

this house

this house

{image is a photo of Brooke and Katie kissing my Grandma last Thanksgiving} – Katie and I went on a trip with my Grandma last night. As we sat with her in her room, her eyes closed, a grin lighting her face, we traveled with her as she meandered through the woods of memory and out … Continue reading

disney das

disney das

  I promised to write about Disney’s new disability program. I’ve been avoiding it. I’m not entirely sure why. It’s overwhelming, I guess. Trying to find the threads within the fabric – to unravel our trip into days and the days into moments and to somehow deliver it to you in some kind of manageable … Continue reading

lessons in love

lessons in love

As Katie and I sat with my beautiful 94 year-old grandma today, we did our best to follow her as she traveled in and out of lucidity. But even in the moments in which she seemed to have lost the thread of the present, she was still so wonderfully, gloriously fundamentally, well, herself. She handed … Continue reading

middle school

{image is a photo of Brooke dancing before school yesterday, as you do.} Oh, guys, I have so much to say about the middle school visit. It will definitely warrant a post (or a book), but in the meantime, here’s my one big takeaway .. It’s going to be okay. #RightPeople #RightPlace #Grateful #Exhaling #WeWillKeepWorkingUntilEveryParentAndEveryChildCanSayTheSame … Continue reading

selling fear

History will have to record that the greatest tragedy of this period of social transition was not the strident clamor of the bad people, but the appalling silence of the good people. ~ Martin Luther King, Jr. – I have been asked numerous times over the last twenty-four hours to write a response to yesterday’s … Continue reading

dear diezel

  Toni Braxton, a Grammy award-winning singer who had an abortion a decade ago, pined in her recently released memoir that perhaps God punished her for the procedure by inflicting her second-born son with autism. She said the guilty feeling stems from a strict Christian upbringing that required her to memorize 26 Bible passages each week … Continue reading

paralyzed with gratitude

paralyzed with gratitude

– I’ve been trying to write this post for a month. Every time that I sit down to write it, I stare at my screen waiting for the words to come, but they don’t. I can write about big things, I can write about anger and fear and heartbreak. In fact, writing about them, reducing … Continue reading

for the love of the dance

for the love of the dance

  Katie and I are chatting as we walk. Well, Katie’s chatting. I’m listening. And trying to keep up. Good Lord, this child can talk a blue streak. Yes, I know, she comes by it honestly. Thank you. She’s talking about a boy in her class who she assumes (and we know) is on the … Continue reading

lost in conflation — not autism

Why is it that we are so quick to demonize autism — to make it the catch-all for anything difficult in our children’s lives, in our families’ lives; how is it that we are perfectly willing to assign to it anything and everything challenging and yet, when we find something beautiful, we say that is … Continue reading