Posted in January 2015

dashers

dashers

A while ago, I posted a photo on Diary’s Facebook page of Brooke shredding ribbons in the car. Like this:       {image is a photo of Brooke, shredding a rainbow striped grosgrain ribbon} And you asked what we do with the detritus of this activity, which looks like this: {image is a photo of … Continue reading

new york part two: enchanted by disenchanted

new york part two: enchanted by disenchanted

{image is a photo of the ladies of Disenchanted. From left to right: The Princess Who Kissed The Frog, The Little Mermaid, Beauty, Snow White, Mulan, and Cinderella.} Okay, so where were we? If I remember correctly, we were walking West to catch the matinée of Disenchanted. Let’s back up and find out how we got … Continue reading

if we can make it there .. (part one)

if we can make it there .. (part one)

Everybody ought to have a Lower East Side in their life.  Irving Berlin When my grandmother passed away last week, one of the first things that Katie said was, “Mama, please don’t think twice about postponing our weekend in New York. Whatever we need to do, okay?” My heart ached for my girl. The trip meant … Continue reading

trust

trust

  {Image is a screenshot of The Mighty, where the post used to be. The text reads, “We removed a story that was titled “This Is the Letter I Would Give My Past Self on the Day We Got the Diagnosis” because it contained sections that were previously published in this post. Thank you to everyone who pointed … Continue reading

online privacy – part a million

online privacy – part a million

{Image is a photo of a single type-written word. Privacy.} Last night, I found myself in a long conversation on Diary’s Facebook page about what it means to me to be the guardian of my daughters’ privacy. And as much as I’d like to channel Ilsa and let it go, I can’t. Because this is big … Continue reading

playing the role of oomah

playing the role of oomah

In the chaos of the last couple of days, two moments. Brooke often uses her favorite shows as a way to process and understand the world. It’s a brilliant strategy, really, reformatting that which is otherwise frustratingly shapeless, conceptual, intangible into the well-defined and relatable structure of a television show or movie. As such, this … Continue reading

but i will miss her terribly

but i will miss her terribly

Ed note: My dad asked me to write something to read after my grandmother’s funeral today, when we will gather with family and friends and those who she held dear. Nothing I could write could possibly be enough. There are far too many stories, too many memories, too much love to wrangle into words written … Continue reading

but what if he’s wrong?

but what if he’s wrong?

  {image is a photo of me at a podium, speaking into a microphone at an Autism Speaks walk kickoff in 2010.} Yesterday, I read a post that was written a couple of months ago, but just made its way to my screen. It was written by a woman who goes by Amythest on her tumblr, … Continue reading

at the same time

at the same time

{image is a photo of the whole gang decked out for our 10:57 new years celebration.} SEVEN! I don’t know why Brooke insisted that we count down from seven, but it clearly mattered to her. She was adamant that we not start at ten. So it is that we are starting at seven. SIX! It’s 10:57, … Continue reading

fifteen years hence

fifteen years hence

Ed note: The following is adapted from Ten Years Hence, originally posted on Hopeful Parents, January 1st, 2010. TEN! Luau and I stand on a riverboat in New Orleans, ready to ring in the new millennium. I tuck into my wrap to ward off the wind. Who knew it would be so cold in New Orleans? … Continue reading