Tagged with disability

her S

her S

{Image is a photo of Brooke in our friend’s pool on Monday afternoon, just moments before the following conversation took place.}  “When I was a baby, did you make me austistic?” “No, sweetheart, God did that.” “Why did God make me austistic?” “I don’t know, love. He just did. I guess He knew that autism … Continue reading

the same

the same

Us {image is a photo of Katie, Luau, me and Brooke on the beach at sunset – courtesy of Connerton Photography} Luau and I started watching The Normal Heart over the weekend. It’s an incredible movie and one that I highly recommend, particularly if you’re not old enough to have been socially or politically conscious through the early eighties. … Continue reading

disney das

disney das

  I promised to write about Disney’s new disability program. I’ve been avoiding it. I’m not entirely sure why. It’s overwhelming, I guess. Trying to find the threads within the fabric – to unravel our trip into days and the days into moments and to somehow deliver it to you in some kind of manageable … Continue reading

beyond tolerance

beyond tolerance

– There was a time that I thought that tolerance was the goal. I used the word freely. “Awareness,” I would say in the first speech I ever gave, “leads to tolerance.” And then I began to understand that no one in this life is looking to be “tolerated.” Because, you see, to tolerate means … Continue reading

disney – a work in progress

Ed note: I am not a journalist, friends. I’m a mom with a blog. While I will do my best to make this accurate and concise, I’m sharing my, rather than reporting a, story. Jess Although changes to Disney’s Disability Policy had long been the subject of speculation, rumors about its imminent demise hit a … Continue reading

wondering

Journalists camped outside of St Mary’s Hospital in London For weeks, the eyes of the world have been on Great Britain. We all, even those of us for whom the royals are a mystery, waited with bated breath for the Duchess to deliver an heir to the throne. The royal family is undeniably interesting, but Kate and William … Continue reading

we promise

* This is hard to write. It would be easy were this an actual diary, the kind under lock and key for no one’s eyes but my own, and then perhaps, someday, my children’s, long after I’m gone and they find it packed away in a dusty attic. But alas, this is not that kind … Continue reading

why jet blue rocks, by me

~ All, I wrote the following post yesterday before the HuffPo piece came out. I still want to post it today, because, well, it’s kind of awesome (not the writing, the story), but I just have to take a moment first to tell you something. Come close, would ya? This is big. I have been … Continue reading

worthy

~ Last night was hard. For a lot of reasons. But after an evening of reasons, one nearly broke me. I read the story of Paul Corby. According to Strollerderby, Paul “has Left Ventricular Noncompaction, a rare, congenital disorder in which part of the heart muscle appears spongy, or “non-compacted.” The heart is less able … Continue reading

support

* In yesterday’s post, I made reference to an article that I read recently about a Sheriff in Cook County Illinois. The Sheriff, Tom Dart is threatening to sue state and local government officials. Why? Because, according to the article. “the county jail is so overwhelmed with people whose offenses are more attributable to mental … Continue reading