Tagged with special needs parenting

yes, virginia, this is a metaphor

Yeah, that. “Is this the summit, crowning the day? How cool and quiet! We’re not exultant; but delighted, joyful; soberly astonished. . . Have we vanquished an enemy? None but ourselves. Have we gained success? That word means nothing here. Have we won a kingdom? No. . . and yes. We have achieved an ultimate … Continue reading

note to self

My sweet girl, Of all the things that I passed on to you, this might be one of the hardest for me to bear. Because it was not genetic, not immutable; it was purely by choice. Or choices. Thousands upon thousands of seemingly unimportant choices that created a mindset around how you value your body. … Continue reading

the search for a new language

*** In short, we can live inside our fear for the future or we can say to hell with it and run alongside her as she blazes a path that leads us unwittingly to our own self-acceptance as we guide her to hers. And we can invite everyone with whom we come into contact to … Continue reading

it mattered

~ 2003 ~ When babies are born, people are compelled to offer advice. Whether or not its sought, or even welcome, it comes to new parents at lightening speed. If she falls asleep too early, wake her up or you’ll both be up all night! No matter what, you never, ever, ever wake a sleeping … Continue reading

dear you – part two

As you may recall, yesterday’s post started like this .. Dear Friends With Special Needs Kids, I have something to tell you. And I’m thinking that you don’t hear it enough. So come closer and pay attention, OK? This is important. YOU ROCK. I went on to tell you a few of the specific ways … Continue reading

dear you

Yeah, you ~ Dear Friends With Special Needs Kids, I have something to tell you. And I’m thinking that you don’t hear it enough. So come closer and pay attention, OK? This is important. YOU ROCK. Yes, you. Why are you still looking at everybody else in the room? I’m talking to YOU. And no, … Continue reading

12 things i learned on my weekend away

Fred the iguana – 1. Banana Malibu Coladas are just as yummy as they sound. 1.a And they make for a sort of awesome picture. – 2. Men make assumptions about women of a certain age (as in my certain age) who are sitting at a bar at a Caribbean resort with a girlfriend. 2.a … Continue reading

my village

Diary of a Mom Facebook status, Saturday at 2:33 pm for the first time in (literally) as long as i can remember, i am about to get in the car with three girlfriends, take a road trip to go visit eight other girlfriends and – get this .. i’m SLEEPING OVER! am i feeling guilty … Continue reading

we both know i’m lying

Survivor, survivor’s, or survivors guilt or syndrome is a mental condition … It may be found among survivors of combat, natural disasters, epidemics, among the friends and family of those who have committed suicide, and in non-mortal situations such as among those whose colleagues are laid off. The experience and manifestation of survivor’s guilt will … Continue reading

oops i did it again

** Sunday, mid-afternoon. Katie and I are walking quickly through a local shopping plaza. We are set to meet Kathleen at the beach later in the day for our family photo shoot.  I need to find a shirt to wear for said photo. I’m in a mild panic. Katie looks at me, nose scrunched as though she’s … Continue reading