Posted in November 2013

Thanksgiving 2013: A Day in Pictures

So you know those bloggers who post beautiful, color-corrected, photo-shopped, perfectly lit pictures, every one of which could be the photo that came in the frame? I’m not them. Now that we’ve gotten that out of the way, I give you Thanksgiving, 2013: A Day in Perfectly Imperfect Pictures. First, there was the Brownie Escapade … Continue reading

time out

– In 2008, I wrote a post called Getting There is Love. It was painful to write and, to this day, I find it nearly impossible to read without being swallowed whole by guilt and remorse. As much as I don’t want to revisit it today, I can’t help but feel pulled back to that … Continue reading

perspective

– Oh, guys. I’m all over the place this morning. You see, comments and questions and, “But you don’t understand”s are still steadily streaming in in response to my post about the damaging rhetoric that Autism Speaks insists on continuing to use despite the passionate protest of Autistic people and their families. And so, while … Continue reading

what matters

– Katie has one of the leads in her school’s Fall play. Excited doesn’t begin to describe how she feels about it. Talk of rehearsals and the antics of the cast and crew have dominated dinner conversation for the last six weeks. She can’t wait. The play opens tomorrow night. This is what’s known as … Continue reading

this is autism – flashblog

– As you may know, there’s a flashblog happening today called This is Autism, in response to Suzanne Wright’s recent repeated use of the phrase in last week’s Autism Speaks to Washington: A Call to Action. The request for submissions reads as follows: Tell us what “This is Autism” means to you. You can write … Continue reading

facilitation

Rocket Ship Headed to Mars, Brooke 2013 Facilitate (fa-cil-i-tate) / fəˈsiliˌtāt/ verb (used with object) Definition: to make easier or less difficult; help forward (an action, a process, etc.); make possible; make smooth / smoother; smooth the way for Synonyms: enable, assist, help (along), oil the wheels of, expedite, accelerate, forward, advance, promote, further, encourage, … Continue reading

as he does

– Ten years ago, I walked in on my husband in a somewhat awkward situation. He was wearing a hot pink feather boa. As if that weren’t enough, he was also sporting a jeweled crown, a big plastic ring and enough beaded necklaces to make everyone at Mardi Gras green with envy. And truth be … Continue reading

the ends, the means and the cost

– To the parents who said that Suzanne Wright’s Op-ed reflected their experience with their children, I want you to know that I hear you. I want you to know that I do not paint Autism with just as broad a brush as Mrs. Wright did. Autism is a spectrum. A spectrum as vast as … Continue reading

or water

Katie (5) and Brooke (3), 2007 * It is 2007. Luau and I are sitting at the kitchen table, interviewing a home service provider. Or perhaps she’s interviewing us. I don’t know which end is up. I just know that we need help. Brooke is three years old. She lives in a state of frustration. All we … Continue reading

no more – a letter to suzanne wright

My girl cracking herself up with scripts last night I was once asked, “If you have so much trouble with the fact that Autism Speaks uses the words “disease” and “cure” in its marketing materials, what would you have them say instead?” I thought about it for a moment, and said, “Well, I suppose I’d … Continue reading