Posted in June 2014

chloe’s story

chloe’s story

{one of my favorite pictures of Chloe, Katie and Brooke} Almost two years ago, I met Chloe, a young woman on the autism spectrum who had reached out to me through Diary. Within days of our meeting, she and Brooke connected via email. I wrote a post about their initial interaction HERE. It’s a little confusing as … Continue reading

the color blue

the color blue

{image is a hand painted mosaic rainbow lightbulb and the beautiful, multicolored light which it casts. Click on the image to order one from MoodLights on Etsy, with whom I have no affiliation whatsoever} As many of you know, after years of trying desperately to change the way in which Autism Speaks approaches autism advocacy, I … Continue reading

i’m sorry, hold the but

i’m sorry, hold the but

{image is a photo of me and Katie laughing together on the beach, courtesy of Connerton Photography, all rights reserved}  Katie and I are hanging out in my room. We’re sitting on the floor, as you do. “Mama,” she says, “Do you want to tell me what’s bothering you? I mean, you don’t have to … Continue reading

playing defense

playing defense

{image is a photo of Brooke at the amusement park this weekend} I can’t stand when I hear parents lament the fact that they’re so distraught because their autistic kids hated soccer or ballet or whatever *because they’re autistic*. What if they just hate soccer or can’t stand ballet? Why does that have to have anything to … Continue reading

who rescued whom

who rescued whom

{Image is the button panel inside an elevator. A child’s hand can be seen pushing a button.} I talk a lot here about how incredibly blessed our family has been to have a formidable team of professionals supporting Brooke. Some are teachers, others are therapists, others still are school staff members who take the time … Continue reading

we leave as family

we leave as family

  {image is a photo of a memory jar in the making. The strip, written to her aide, Ms J, says, “Thank you for helping me believe in me.”} – Dear Team Brooke,   Six years ago, Luau and I were terrified. We were clinging to the door of the preschool for dear life, unable to … Continue reading

success

success

{Image is a photo of my beautiful friend, Barb, co-author of one of my favorite books and generally one of my all-time favorite people. She is, by anyone’s definition, a success. She is non-speaking.} Oh, friends. There’s something I have to say. I hope you’ll indulge me. Actually, please do indulge me. It’s important. Yesterday, I … Continue reading

i didn’t either

i didn’t either

{image is a selfie of Brooke and me on the beach on Sunday, taken during our walk} Yesterday, I wrote about a watershed conversation that I had had with Brooke over the weekend. One in which she declared that she likes being autistic. It was arguably the longest unscripted conversation that we’d ever had and truthfully, … Continue reading

i like being autistic

i like being autistic

September, 2010 After a day spent immersed in capital ‘A’ Autism – as opposed to a day immersed in little ‘a’ autism which would simply be, well, ya know .. a day – I wondered what she’d taken in. Did she hear the speaker at the Walk that called autism a ‘disease’? Though it causes … Continue reading