Posted in December 2013

what i’ve learned

My friends, I want to write something profound to mark the changing of the year. Something reflective, perhaps, of the year that we leave behind, or hopeful, maybe, extolling the promise of the year to come. Honestly, I just don’t have it in me. And of all the lessons that I’ve learned this year, this, … Continue reading

extraordinary

  My child is not typical. Trying to force her to be something that she’s not doesn’t work. Let’s play a game, shall we? Hey, mom, you need to be autistic now. What? Don’t worry; we’ll show you how. We’re going to give you therapy to make you autistic. But I’m not autistic. Not really … Continue reading

my christmas miracle

Brooke at my office on Christmas Eve  Please, please, please (pretty please?) click HERE before continuing. I’m begging. The rest of this post will have no meaning without the context. Go. I promise I’ll be here when you get back. On Monday night, I told Brooke that I had to go to work on Christmas Eve. Her face … Continue reading

mini me

I think I’ll call him Mini Me Yesterday … Katie and I are in the car on our way to pick up a couple of last-minute stocking stuffers for Luau. She is drinking the coconut bubble tea that I just bought for her at lunch. It looks delicious. I ask for a sip. She hugs … Continue reading

daddy love – it’s in the script

Any man can be a father, but it takes someone special to be a dad. – Unknown Last night, we took Luau out for his birthday. Since I’d been chronicling the day in pictures from the start, I had my phone close at hand. I figured I’d get a snap of the ludicrous 22-ounce steak … Continue reading

evolving communication

evolving communication

Temple’s journey is marked by shared concern and shared expertise. There was nothing more important than consistency between school and home. – Eustacia Cutler, speaking about her daughter, Temple Grandin – From the moment that Brooke began receiving special education services at age three, we started a daily correspondence routine with her team. We have … Continue reading

autism, puberty and respect

– Honestly, our kids should just get a pass on the whole puberty thing. – a fellow autism mom – I want to write about the intersection of autism and puberty. I want to tell you that I’m struggling. With how to talk to Brooke about all of it – not just about what is … Continue reading

wave on wave

wave on wave

Me and Pat A few years ago, I had the chance to meet the man who sings the soundtrack to much of my life. That’s him up there. His name is Pat Green. And yes, he’s a lot taller than me. Most people are. When I met him, I tried to tell him how much his … Continue reading

the miracle therapy: time

the miracle therapy: time

How did we do this? What was this cutting edge therapy we had found, this latest in scientific development? It was plain old being ready. Time.  Susan Senator, The Autism Therapy That Worked For Us: Time – This is why I tell you not to give up. This is why I insist on redefining what … Continue reading

acceptance

acceptance

There is no chain so strong as that of unfulfilled expectation. No tether more binding than that which holds to the anchor of an image of a life one believes should have been theirs. Acceptance is not resignation. It is not a declaration of surrender. Rather, when truly and deeply drunk it is the draught … Continue reading