the courage to listen 

There’s something that tends to happen an awful lot in advocacy circles (and everywhere, really, but it’s most obvious there) and I was hoping we could talk about it. It tends to go something like this: Someone, typically a member of a radically disenfranchised community (let’s call them A) says, “Doing X, no matter how … Continue reading

inspiration porn goes to the prom

inspiration porn goes to the prom

{image is the word “PROM” spelled out in a delightfully cheesy balloon arch. I kinda love it.} So apparently we’re in the height of prom season. One might be forgiven for thinking that prom season would be in May or June when most proms are typically held, but in a country where we start decorating for Christmas … Continue reading

understanding our differences

Yesterday, I was honored to step in for my friend Susan Senator and speak at a benefit for a wonderful organization called Understanding our Differences. UoD is a pioneer in disability education. Through a participatory curriculum for elementary schoolers, they live their mission of demystifying human differences, supporting inclusion, and building bridges to true and … Continue reading

the perfect addendum

the perfect addendum

In September of 2014, I wrote the following post. It was hard to write then and it’s hard to share now. Not because I don’t believe it to be true – I do, fervently – but because I worry that I’m not the one who should be saying it. But I am. Because this time … Continue reading

the effort alone

the effort alone

  A little while ago, I got a letter in my inbox that left me in a puddle of tears: sad ones, happy ones, beautiful, heart-wrenching hopeful ones. The letter wasn’t addressed to me. It was from my friend, Conner, and he was asking if I could pass it on to my dad. It began … Continue reading

what i can

{image is a five year-old photo of me hugging Brooke on the beach. It just felt right. Photo credit: The amazing lens of Connerton Photography, all rights reserved} I’m running late. Brooke is still in the shower. I’m trying to hurry her along without pressuring her too much. “Rushing” is not exactly in her repertoire. … Continue reading

switched on

switched on

{image is a photo of John and me after lunch last week. To find out why we’re laughing, see the photo at the end of the post.} Last week, I had lunch with one of my all-time favorite human beings, John Elder Robison. I always feel so blessed to have time with John. In all … Continue reading

explaining epilepsy 

explaining epilepsy 

Last night, I was on a mission. I wrote to a couple of local listserves asking for their help. All, I’m looking for anything that may help me explain seizures to my daughter. She’s in seventh grade, but text geared toward 1st – 4th grade is probably most accessible. Thanks in advance. Jess I was … Continue reading

just you

Come closer, would you? I have something that I really want to talk to you about but I kinda need your full attention. I know that some of you really don’t buy it when I say that we need not teach our children to hide their autism but instead teach the world to accept autistic … Continue reading

in their celestial kitchen

Monday afternoon. Brooke and I are in the car, on our way home. “Do you remember when Kiki was crying in January?” she asks. I try to call up a script, but come up dry. I’m not sure what my response is supposed to be. “Why was Kiki crying?” I ask. “In January,” she says. Ah, … Continue reading