switched on

switched on

{image is a photo of John and me after lunch last week. To find out why we’re laughing, see the photo at the end of the post.} Last week, I had lunch with one of my all-time favorite human beings, John Elder Robison. I always feel so blessed to have time with John. In all … Continue reading

explaining epilepsy 

explaining epilepsy 

Last night, I was on a mission. I wrote to a couple of local listserves asking for their help. All, I’m looking for anything that may help me explain seizures to my daughter. She’s in seventh grade, but text geared toward 1st – 4th grade is probably most accessible. Thanks in advance. Jess I was … Continue reading

just you

Come closer, would you? I have something that I really want to talk to you about but I kinda need your full attention. I know that some of you really don’t buy it when I say that we need not teach our children to hide their autism but instead teach the world to accept autistic … Continue reading

in their celestial kitchen

Monday afternoon. Brooke and I are in the car, on our way home. “Do you remember when Kiki was crying in January?” she asks. I try to call up a script, but come up dry. I’m not sure what my response is supposed to be. “Why was Kiki crying?” I ask. “In January,” she says. Ah, … Continue reading

the garden

The other day, Katie and I were talking about relationships. She told me that she had a friend who has planned out her whole life – when she’s going to meet her husband, when they’ll marry, when she’ll have kids. I smiled. I remember when I too believed that we each have control of such … Continue reading

eyes are ears and other myths

eyes are ears and other myths

Last night, I posted the following on Diary’s Facebook page: Oh, Brooke. I’m so sorry. I saw that worksheet that came home in your backpack. The one on which you’d so diligently parroted back the lessons about what’s necessary to convince people that you’re listening to them, writing in “eye contact” so neatly, right there … Continue reading

representation

representation

{image is the iconic depiction of a hand on which is written the mantra of the disability advocacy movement: Nothing about us without us.} Yesterday, Lydia Brown wrote a searing post about the lack of autistic representation on the Massachusetts Autism Commission. Not only, Lydia tells us, is there only one seat out of 35 held for … Continue reading

whippourwill

whippourwill

{image is a photo of Steven Kurtz at work in the kitchen. He is, of course, smiling.} Oh, hi. You’re still here! That’s awesome. I really appreciate you sticking around, especially because I have a pretty cool story to share. Well, a couple of them actually, but let’s take it one at a time, shall … Continue reading

proud

Brooke and Anna in a picture that Brooke insisted that I take on the way out the door. They are hugging.  On Saturday night, Brooke had a sleep over at her friend, Anna’s house. When I picked her up on Sunday morning, I told her that we’d be stopping off at the deli to grab some … Continue reading

not her words

No, I haven’t read that new autism book yet. No, I didn’t watch that special on autism last night. No, I don’t have an opinion on that article that you sent me three days ago. Why? Because I don’t have the bandwidth for it right now. I just don’t. I can’t. It’s too much. My dear … Continue reading