dear suzanne – again

dear suzanne – again

Dear Suzanne, It seems we’re here again. I don’t want to be here. I don’t want to be having a different version of the same old tired conversation. But I don’t know what else to do. I don’t know how else to counter the harm that you continue to do in the name of some … Continue reading

the color blue

the color blue

{image is a hand painted mosaic rainbow lightbulb and the beautiful, multicolored light which it casts. Click on the image to order one from MoodLights on Etsy, with whom I have no affiliation whatsoever} As many of you know, after years of trying desperately to change the way in which Autism Speaks approaches autism advocacy, I … Continue reading

playing favorites

playing favorites

 I wanted to find an image of an actual Welcome mat, but then I found this and it’s got wellies AND a rainbow, and well, doesn’t it just make you feel welcome? Moving on … I’ve been struggling with something. Wrestling with right and wrong and the rights of the wronged and egos and bruised … Continue reading

no more – a letter to suzanne wright

no more – a letter to suzanne wright

My girl cracking herself up with scripts last night I was once asked, “If you have so much trouble with the fact that Autism Speaks uses the words “disease” and “cure” in its marketing materials, what would you have them say instead?” I thought about it for a moment, and said, “Well, I suppose I’d … Continue reading

phone home

  ~ * Yes, this was an actual conversation ~ Yup, I gave in. Caved. Crumbled like a house of cards. Go ahead, say it – ‘If all the other moms were jumping off a bridge, would you jump off a bridge too, Jess?” Apparently, yes. Yes, I would. I got Katie a phone. Well, … Continue reading

person first

* “…One thing bugged me and I don’t see how it still happens especially in this tight knit community. This is referring to a person with autism as autistic (I.e. my autistic daughter/son/brother/etc.). One big step we could all make as a whole is to utilize person first language a person with …(insert any disability)… … Continue reading

his body does his feelings

Brooke, doing happy – Katie and I are chatting as we walk. Well, Katie’s chatting. I’m listening. And trying to keep up. Good Lord, this child can talk a blue streak. Yes, I know, she comes by it honestly. Thank you. She’s talking about a boy in her class who she assumes (and we know) … Continue reading

not wrong

Gratuitous picture of my girl that has nothing to do with the post you’re about to read – Brooke and I are cuddled in her bed. It’s getting late and at least one of us is nodding off. It’s time for me to go. “OK, baby,” I ask, “who’s picking the number?” “You would do … Continue reading