Tagged with amy sequenzia

just like me

just like me

The questions took me back to that feeling, that desperate, lonely, feeling of being a broken version of everyone else around me. I remember how it felt to never have a character in a book, movie, t.v. show, or a song on the radio reflect who I was. I remember the feeling of looking around … Continue reading

but what if he’s wrong?

but what if he’s wrong?

  {image is a photo of me at a podium, speaking into a microphone at an Autism Speaks walk kickoff in 2010.} Yesterday, I read a post that was written a couple of months ago, but just made its way to my screen. It was written by a woman who goes by Amythest on her tumblr, … Continue reading

her decision

her decision

{image is a photo of Brittany Maynard with her family a week and a half before she ended her life} Brittany Maynard died this weekend. Her death, at 29, was tragic and heartbreaking. She made a choice that I believe that she had a right to make – to die when she felt the time … Continue reading

different roads to success

different roads to success

{image is a photo of Brooke standing on Luau’s shoulders on the beach in Newport, RI. She looks as though she is flying. Photo courtesy of Connerton Photography’s magic lens. All rights reserved.} – During the talk, Dr Draper asked a ten year-old girl to come to the stage. She asked her her name. The girl … Continue reading

the price of independence – sharing it

{image is a photo of the Statue of Liberty} Until we are all free, we are none of us free. – Emma Lazarus (often misattributed to MLK Jr, who later paraphrased Ms Lazarus) – I have so many thoughts about Independence Day that, quite frankly, really have almost nothing to do with the Fourth of … Continue reading

the color blue

the color blue

{image is a hand painted mosaic rainbow lightbulb and the beautiful, multicolored light which it casts. Click on the image to order one from MoodLights on Etsy, with whom I have no affiliation whatsoever} As many of you know, after years of trying desperately to change the way in which Autism Speaks approaches autism advocacy, I … Continue reading

again

again

Text: If you really want to be an advocate, start by listening to the people you claim to be advocating for. Earlier today, I sent the following email to Liz Feld, President of Autism Speaks. It is short and not particularly well-written, but it is what it is. I didn’t feel the need to repeat … Continue reading

no more – a letter to suzanne wright

My girl cracking herself up with scripts last night I was once asked, “If you have so much trouble with the fact that Autism Speaks uses the words “disease” and “cure” in its marketing materials, what would you have them say instead?” I thought about it for a moment, and said, “Well, I suppose I’d … Continue reading