Tagged with autistic

the perfect addendum

the perfect addendum

In September of 2014, I wrote the following post. It was hard to write then and it’s hard to share now. Not because I don’t believe it to be true – I do, fervently – but because I worry that I’m not the one who should be saying it. But I am. Because this time … Continue reading

and never is a load of crap

and never is a load of crap

When we got home from Brooke’s chorus concert last night, I posted the following on Diary’s Facebook page: Brooke’s friend, Becky, who is not in the choir, came to the school tonight to see Brooke sing. Becky, like Brooke, is autistic. Sitting through an hour-and-a-half-long band and chorus concert is not an easy feat. But she … Continue reading

on function

Earlier this week, I posted the following on Facebook. I talk a lot here about why assigning functioning labels to human beings is pretty much crap. I talk about the fact that labeling a human ‘high functioning’ dismisses their very real challenges while calling another ‘low functioning’ dismisses their very real abilities – often along … Continue reading

a new friend

{image is a photo of Brooke, taken by Katie last weekend. She is squatting in the sand and looking back over her shoulder smiling.} Saturday … Brooke and I are at the mall. It’s not going well. In fact, it’s going pretty damned not well. She asks to go into the toy store. I know … Continue reading

the invitation 

{image is a photo of Brooke at Surfside Beach on Nantucket, dancing with the sea.} For years, I lamented the moments in which my girl, in the word I’d have used, “disconnected.” (I hate this next sentence, but the truth of it cannot be denied.) When my girl, as I was so sure she did, … Continue reading

neurology as identity, not accessory

neurology as identity, not accessory

{image is a photo of a man reaching for his suitcase. Text reads, “If I’m on a flight and the airline loses my luggage, I don’t arrive without my autism. – Ari Ne’eman”} – As most of you know, I have chosen, unless and until Brooke directs me otherwise, to follow the Autistic community’s lead … Continue reading

the school to prison express

the school to prison express

{Image is a photo of  young child in handcuffs. Read the story it came from here.} The headline of the article read, “Judge Finds Lynchburg Middle Schooler with Autism Guilty on Criminal Charges.” In the body of the article was the following .. Doss told PRI that Kayleb was instructed that day to wait – while … Continue reading

care and handling

care and handling

Yesterday, I posted the following on Facebook: Three years ago when Brooke needed to have a couple of baby teeth pulled, we were told (and agreed) that the only way to do that would be in a hospital, under general anesthesia. That was what we did. Last month, we were told that she needed to … Continue reading

online privacy – part a million

online privacy – part a million

{Image is a photo of a single type-written word. Privacy.} Last night, I found myself in a long conversation on Diary’s Facebook page about what it means to me to be the guardian of my daughters’ privacy. And as much as I’d like to channel Ilsa and let it go, I can’t. Because this is big … Continue reading